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THE MIKE BALL LEGACY FUND
... operated through the Fremantle Foundation

When Mike was diagnosed with younger onset dementia in XXX he was just XX years of age. Faced with alot of uncertainty, it quicky became obvious there was little informaton or support structures for people with Younger Onset Dementia (YOD). It was difficult for the family to find information on the disease itself - to see what lay in front of them, and also where to start to make sure they were getting Mike the best care and support possible.

 

Through their research, Liz, Jamie, Kasey, Kendell and their extended familiy found the wonderful support services provided by organisations such as the Dementia Care Network of Western Australia, Memory Nurture and  XXXXX

 

The goal of the daily grind is to assist other families by providing the financial assistance to access these services.

 

Some examples of the tangible help and people the Dememtia Care Network of Western Australia have been working with recently include:

 

A 47-year-old single mum being diagnosed with genetic YOD. She did not have the funds to pay for a consult so we offered it to her free of charge, however this unfortunately isn't always possible. We sorted all of her paperwork and we lodged her EPOA, paid for it , and we are organising application for the NDIS, which is being approved and settled next week. 

 

We have a young mother in a small town who is now immobile so we are organising a wheelchair - they don’t own a car but this way her husband can push her around into town and she can at least get out of the house. They also have a large bill from a public hospital because of her last recent stay they are paying this off at five dollars a week and it is causing them a lot of stress.

 

There is a 52 year old woman with quite advanced dementia, her husband is working six days a week to allow for the loss of her income. She’s not showering, so we have to come up with a plan that involves turning up every few days with a gift bag with some 'new clothes', and ask her to try them on... it is a way of getting dirty clothes of her for a wash and at least a clean set of clothes on her. It doesn’t replace her shower, but it is a step in the right direction. 

 

We have a 60 year old gentleman who's family have been struggling to get him on the NDIS for the last year for certain reasons. Due to no support at home he has ended up being taken by the police and put into hospital. He has had to be placed in the mental health unit and we assisted the family to push the NDIS, met with the hospital social workers and have now had him released into a supported independent living home. He gets 24 hour day care. 

 

Another big part of what we do is counseling and working with the family as the person with dementia honestly, most of the time doesn’t know who or what’s going on, so I think it’s working with the family and offering them support as well, which is a key part

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